Feeding tube...

thanks so much for praying and desiring to know regular updates for my brother and his family.. it is really touching and humbling. I read this today from Courtney.

Update: Shannon has not gained weight. Doctors feel a feeding tube may be in the near future. She is still unable to keep down the anti viral and there are no options of waiting to give it until the line is put. A"line" is a open port surgically implanted in her chest to give doctors and IV team direct access to a vein to give and take blood as well as give IV fluids and meds. Because of risk of infection the line cannot be put in until we have a donor match. Thus we are left with a feeding tube with hopes that giving the medicine directly to the stomach bit by bit will help her keep it down.
Blood draw tomorrow or Tuesday, but for now we rest with another day without the trauma of a blood draw and hoping for weight gain and rest.

Please continue to pray for faith that God is in control and that Courtney would remember that we were never promised a life without suffering but we can take heart that Jesus has overcome the world and He is our only hope : )

John 16:33

I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.”

Romans 8:31-39

What then shall we say to these things? If God is for us, who can be against us? He who did not spare his own Son but gave him up for us all, how will he not also with him graciously give us all things? Who shall bring any charge against God's elect? It is God who justifies.Who is to condemn? Christ Jesus is the one who died—more than that, who was raised—who is at the right hand of God, vwho indeed is interceding for us. Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution, or famine, or nakedness, or danger, or sword? As it is written,
“For your sake xwe are being killed all the day long;
we are regarded as sheep to be slaughtered.”
No, in all these things we are more than conquerors through him who loved us.

For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, 39 nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord.

Romans 12:12

Rejoice in hope, be patient in tribulation, be constant in prayer.


love,
jenny

Pray for Liam's sickness...

Update from Courtney// She spent the night at home and now it appears that Liam
has croup and so she cannot be in the hospital


Please continue to pray our family. Our son Liam, who never gets sick, came down with what sounds like croup. Waiting to hear from our team of doctors if I'll be able to be with Shannon or have to wait 3-5 days. Heartbreaking.


Jenny

More Updates : )

Hi there : )


Here is another update from Courtney

please PLEASE pray for Liam to be a match. If he is not the international donor pool can take 2-4 months! I'm hoping for a miracle still. I know the Lord can perform miracles and heal her body with a word. The HSL typing for liam and shannon's blood work can take another 2 weeks or by a miracle come back sooner and then things would move fast. In the mean time they want her to grow grow grow. I'm praying for Shannon to reach 8 lbs on the next week. All things are possible through Christ. Pray with me.

I saw this photo below of the two of them and this verse came to mind, Romans 12:15,16

Rejoice with those who rejoice, weep with those who weep. Live in harmony with one another.

Please pray for continued strength and trust in their Creator, Savior, and the One who knows all things and WILL NOT with hold ANY good from them.

thanks,
Jenny

Shannon's skin & throat...

hi friends,

below is an update from Courtney. Would you please pray for healing of her rash and throat?

Update: today is a 4ml blood draw. IV team should be here about 2 pm. Please pray for the Holy Spirit to pour down His peace over Shannon. She automatically cries when she is laid on the bed bc she associates it with pain. She sleeps in bed with me, in her swing or in our arms now. The vistiril is continuing to allow her to sleep. It still causes dryness of throat but PRAISE GOD her skin is less dry today!! The rash looks bad but I believe she is more comfortable. Still gas and tummy trouble but the living waters of Lord can rush through and bring calm to her tummy and bowels! Amen!
Thank you for interceding for our daughter. Please pray for Liam for peace as he adjusts. For peace for my husband and I.

THANK YOUUU!!!!!

jenny

Follow Up(date) from Courtney

Today was a family affair. Liam and I both had blood drawn. Liam did amazing!! He loved playing with all the awesome toys in our unit. It helped me emotionally to spend more time with him and have our family here.
Shannon's rash is worse today. Tylenol, vistiril, and sweeties (sugar water) have helped to keep her comfortable. Today was a huge blood draw so she needs to eat well and rest so her body can recover. Tomorrow more labs and then...WAITING...two weeks to be exact. Waiting to hear if Liam is a match. If he is things move fast. If not then they start looking in an international pool of donors. Pray, pray that Liam is a match. Pray for healing and that match won't be needed. Pray that a miracle will blow the minds of these doctors that don't believe anything short of their plan is possible. God blow their minds and receive You glory!

Strength will rise as we wait upon the Lord. So does our little baby Hope. Shannon's Hope :)

{ FYI, Shannon was diagnosed with SCID--Severe Complex Immune Deficiency }


Jenny

UPDATE : )

Today my darling nephew Liam will be tested to see if his bone marrow is a match for Shannon.
Please pray with me and Ryan and Courtney and so many others that it is?

Ryan texted me yesterday and said that Romans 8:24-25 was their whole life. What a clear, amazing truth to cling to! [and it happens to be my favorite chapter in the entire Bible]

For in this hope we were saved. Now hope that is seen is not hope. For who hopes for what he sees? But if we hope for what we do not see, we await for it with patience.

THANK YOUU!!!!!!

Please pray for Shannon Hope Murphy {my beautiful niece}

Hello,

I just wanted to send or start possibly a 'prayer chain' for my niece Shannon who is just a little over a month old.
She was admitted to the Children's Primary Hospital at the University of Utah a few days ago due to a rash/eczema
that would not go away and possible major food allergies.Needless to say, it has been very challenging for my brother Ryan and his wife Courtney
with many literal sleepless nights and frustrations in not being able to care for their precious newborn child.

I received a call from my brother today stating that the doctors found that Shannon was literally born without an immune system.
I do not know the name of this condition, but it is very rare and is basically a genetic combination of mom and dad. Thankfully,
she did not get sick! Courtney was able to breast feed and that helped in saving her life.
Praise God and that her condition is treatable within 3-6 months. She will need to be treated basically as
an HIV positive patient. She will undergo Chemo Therapy and a bone marrow transplant. Thankfully again, my nephew Liam appears
to be a great candidate for that. Also, this hospital is one of the top in the nation!
Could you please be praying for them? For God to heal Shannon. For financial provision. ( i do not think they have medical insurance : ( !!!! )
For a continued unity in their marriage. And for their church family to continue to support them and surround them with practical help
as there is a long road ahead. And ultimately continued trust and faith in their Saviour Jesus Christ!!!!

Thanks so much on behalf of the Murphy Family,

Jenny