Saturday, December 31, 2011

Married Christians can have the best sex...

Those who are both Bible-believing Christians, are in theological agreement, pray regularly and attend church together have the highest rate of marital satisfaction, the lowest divorce rate, and have the most sex.  --Mark Driscoll


Taken from notes  here

i say, ho-ller...

love,
jenny

Friday, December 30, 2011

Monday, December 5, 2011

new jobs and zoey d

this song is just so great.



in other news, ryan, who is my husband, got a new job.
yes, yes he did... and i bet you will NEVER guess what it is : )

well, i'll tell you anyway. He will be working for a company called CTS.
They are a certified transporting service. yes, they certifiably transport
CADAVERS!! AHHHHHHH!! what a trip, eh? yes, from homes and or hospitals, my
hubby will be the person that takes the lifeless, soul less bodies to the mortuaries,
or other places that the mortuaries will go to pick up the bodies.
ryan is so sweet about it and is able to do it since clearly, its not for everyone.
he already has some fascinating stories and some sad stories and even a 'wow, that person
weighed how much' story.

i.am.so.grateful.for.ryan.michael.freeman.



love,
jenny

Monday, November 28, 2011

my son.

this is oliver. on december 10th he will have lived one full year of life.
he shares the same cap with a daughter of my friend carissa.you should look here http://www.andrewandcarissa.com/andrewcarissa/2011/11/21/home-finally.html



im so incredibly grateful to God for choosing me to be his mother.

jenny

Thursday, November 17, 2011

side effects.

Shannon is having some side effects from her treatment. Would you consider praying for her?

Update: Shannon is beginning to show side effect symptoms: fever, vomiting, high potassium, high heart rate, pain and irritability. We are still grateful that she has done as well as she has.


Jenny

Tuesday, November 15, 2011

another update!!

Update: Shannon's pulse and oxygen are strong tonight 128/100. She had some pretty severe acid reflux today so they are adjusting her medications to help shut her acid production down until this process is over. She had many moments of content awake time which is such a blessing.

Tomorrow we begin 8 hours of ATG and we are need of prayer over Shannon against any of the allergic reactions: hives, high fevers, swelling, severe chills, trouble breathing, vomiting, diarrhea, and lethargy. Please stand with us and call for angels to be around Shannon and for the Holy Spirit to stand guard in her body. The infusion will begin at 9am along with both other chemo drugs. The next 2 days will be intense as she receives the 3 - Fludarbine, ATG, & Busufane.

The Lord has asked us to walk through this process in faith and in faith we ask Him to protect her body and let the doctors be amazed by the miraculous. The hospital coordinator/administrator stopped me today and said, "this is a hard place to be, but I get the chance to see miracles"...and Shannon already is one.

look at her beautiful face! what amazing eyes she has. Shannon is definitely a Murphy : )

love,
Jenny

Day 2 of Chemo.

day 2 of chemo begins at 6am. The zofran seems to keep the nausea down and Shannon continues to eat. Her nurse told me earlier this morning that the Busulfan side effects begin 2-3 weeks after the first dose. So for now nausea is most of what we would see. She is such a trooper. Still praying for deliverance.


Update: Shannon is needing oxygen still but it is on and off. It is most likely caused by the anti seizure meds. She is beginning to spit up and reflux so protonix has been added to give her relief. But all and all she looks good and I got a smile today. Praising God for that.



Jenny



Monday, November 14, 2011

Shannon started chemo..

hi, im sorry for being out of commission the past few days but here is the latest update!!

Update: chemotherapy started at 6am this morning. Shannon's oxygen sats aren't hight enough so we have the blow by on her which is a funnel of oxygen. She has had zofran and ativan to keep her from being nauseous, and IV fluids along with morphine. She has so many lines coming out of her you have to be careful not to get caught in them! She is a trooper, super strong...God's got this.


Jenny

Tuesday, November 8, 2011

more ways to pray...

Here are some specifics from Courtney to pray about for the near future...

Update: IV line in Shannon's head is still holding. She is having pain when they send her medications intravenously so they have slowed the release to 2ml / hr. She is on morphine and adivan for pain management. I called the PICC line off this morning bc the chance of having her NPO for 10 hrs or more was too great and she was under too much stress. I felt peace about keeping her medicated for any further IV placements should another IV go bad before Thursday. Tomorrow Ryan and I meet with our team of doctors to sign release paperwork and go over Shannon's Road Map for treatment. The Central Line surgery is set for Thursday, but of course we have no call time yet.
Please pray with us:
1. That for the first time and the last time her surgery is on time.
2. That the echocardiogram can take place at same time as surgery to avoid two separate sedations.
3. That her IV holds
4. That Shannon's severe diaper rash clears before chemo starts and the skin that is open will close and grow back
5. That Shannon continues to hold her oxygen without support
6. That she doesn't have to be NPO for longer than 6 -8 hours day of surgery

ALL things are possible through Christ. We wait on Him.


so grateful,
Jenny

Pray for Peace....

here is the latest heartbreaking update...

Please pray for peace over Court and Shannon, our baby hasn't eaten since 2am and they failed to do an ultrasound for the procedure this morning. Now they are yet again waiting as as other dept is trying to squeeze Shannon into there already busy schedule... The miscommunication is very hard to handle, especially with people who are supposed to be keeping the child first and always... Please re-post and spread the word to pray for them!

Her heart rate went way high and her oxygen dropped bc she starting holding her breathe and screaming. She turned gray/blue and Court called it. No procedure today cuz they couldn't get there act together and Shannon was suffering.. Patience and guidance and strength God, please we pray.

Isaiah 55:8-13

For my thoughts are not your thoughts,
neither are your ways my ways, declares the Lord.
For as the heavens are higher than the earth,
so are my ways higher than your ways
and my thoughts than your thoughts.
“For as the rain and the snow come down from heaven
and do not return there but water the earth,
making it bring forth and sprout,
giving seed to the sower and bread to the eater,
so shall my word be that goes out from my mouth;
it shall not return to me empty,
but sit shall accomplish that which I purpose,
and shall succeed in the thing for which I sent it.
“For you shall go out in joy
and be led forth in peace;
the mountains and the hills before you
shall break forth into singing,
and all the trees of the field shall clap their hands.
Instead of the thorn shall come up the cypress;
instead of the brier shall come up the myrtle;
and it shall make a name for the Lord,
an everlasting sign that shall not be cut off.”


Jenny

Monday, November 7, 2011

Shannon very swollen : (

Latest updates from last night and today!

Update: I spoke with the attending surgeon last night and she explained that a surgery for Shannon without 48 hours of clear cultures is too big a risk. Dr. Chung said best case scenario is a new line on Friday. So more IV's and blood draws each day until then. Her little hands are so swollen from leaky IV's. She is still fluid positive and we turned her oxygen up last night, but it's still a small amount of oxygen so that is a praise report.
Please pray for the Lord to release Shannon from this burden but that if His plan is for her to walk through this that He would cover her from any more pain and smooth everything out. He doesn't promise a life without suffering, but He does promise to be her deliverer, her comfort, her covering, and her provider and her peace. We are desperate.

both of Shannon's hands and arms are completely blow and swollen from the IVs. She has to have another IV inserted by 12 today. Please pray over.

Isaiah 54:10

For the mountains may depart
and the hills be removed,
but my steadfast love shall not depart from you,
and umy covenant of peace shall not be removed,”
says the Lord, who has compassion on you.



Jenny

Saturday, November 5, 2011

Chemo to start next week.

Update: Tentative surgery for line placement Monday at 2:30pm along with a hearing test and echocardiogram. Still retaining fluid but hasn't needed to be suctioned in the last 12 hours!! Praise God!!

That's sort of where the good news ends...the doctors came in this morning and said they aren't going to intervene anymore with the fluid retention bc they don't want to tax Shannon's kidneys before chemo. They said, "she may not look good or feel good now, but this is way better than we are going to make her feel in a week when chemo starts. You will watch her deteriorate far more than this."

So what can we expect:
Mouth sores/ulcers in mouth, throat, and stomach. Diaper rashes worse than we have ever seen as her body expels the the cells chemo will kill. Weight loss. A feeding tube. Vomiting. Severe abdominal pain. Dry and cracked skin. Dry and cracked mouth along with the sores. And that they say should last a month or more.
No. Can I say that? Can I wrap her up and just take her home and rescue her from that?
Please pray with me. I'm begging God to less this pass over her. To spare her the agony that she can't understand. I'm asking the Lord to let her surgery be On Time with no more than 6 hours without eating and that the OR and the echocardiogram will coordinate and happen at the same time. Please pray for my daughter. My heart aches for her. Our family is desperate for the Lords mercy.

Update from last night

Update: thank you to everyone praying for our baby girl. The respiratory team has suctioned Shannon's nose and chest twice. Her oxygen stats will stabilize and then at other times drop below normal. She is on a small amount of oxygen, but what keeps her from getting off of it is the swelling in her lung tissues. After they did the transfusion Thursday Shannon simply has not been able to release all the fluid she was given she has ballooned in size and has over a 1/2 lb of fluid in the tissues. The doctors want to see Shannon pee that fluid out by tomorrow. Shannon has been tested for viral pnuemonia and that test comes back tomorrow. She has soo much junk in her chest and throat that she can't swallow or drink her bottle down. She at times looks frightened. It's painful to see. But we are grateful she is getting oxygen even though her throat and chest are so full and she sounds blocked like croup.
Lord we need You. We call to You. We will continue to praise You and honor You. Please release my daughter from this swelling and pain so she can eat and sleep. You are God alone and we place her in your loving arms tonight. In Jesus name!

Friday, November 4, 2011

Shannon not breathing well.. please pray.

Here are a few updates from the past few hours... the latest update is not so good.

Update: sweet Shannon is extremely swollen. Her oxygen sats are better at 92 average. They are going to test her for any viruses. Her IV didn't hold so her little hand swelled up more and IV team had to place one in the other hand.
Praise Report: Staph infection testing negative for further growth!! Yay!! She is peeing and releasing some fluid. IV placement went smoothly. Tentative surgery scheduled for monday.
Prayer Request: for Shannon's swelling to release completely! For this IV to hold longer than the last one. For NO viral infection. For her lungs to take deep breaths and for her to NOT need oxygen anymore. For the OR to take Shannon on Monday for surgery on time and with no delay and Shannon to not have to go through more than 6 hours NPO. Prayer that the echocardiogram and hearing test to be done in the OR do Shannon doesn't need sedation more than once. And ultimately for God to heal Shannon completely. It is never to late for Him! But we chose to praise Him and trust Him no matter what He chooses.

please lift Shannon to the Father. She isn't breathing well at all. Her respirations are very high so they aren't allowing us to feed her for fear of aspirating.

Jenny

Wednesday, November 2, 2011

medicaid approved transplant!!

hey all!

Here are the last two updates from Courtney : ) We please still pray for her infection and for her fever to STAY AWAY!!! love to you all.. thank you for being so faithful to pray : )

Update #1- 6 hrs ago--

Oh man. So the infection she has is not what they thought. It's a more aggressive Staff. The following needs to happen: a blood transfusion, draw blood cultures, continue antibiotics and oxygen. If the infection isn't under control in a couple days then she will have surgery to remove the line. Then will be given antibiotics through an IV for 3 days and then will have another surgery to put in a new line.
I'm so not okay with this. Begging God for an intervention and the ability to have peace and good attitude.

Update #2- 3 hrs ago--


UPDATE: Praise GOD!! Medicaid approved Shannon's transplant. HemOnc is ordering her cord blood which takes 3 days if it's international and 1 day within the U.S. Also...Shannon has not had a fever for over 6 hours now. I am believing our Lord that these antibiotics are working and that she will not need surgery to remove the line.
Prayer Request: That Shannon continues to respond to the antibiotics and that Lord's will be done. We ask the Lord for Shannon to be in chemo and ready for transplant by my birthday. That would be the best present on Earth.
November 10

love this verse!!

Then shall your light break forth like the dawn,
and your healing shall spring up speedily;
your righteousness shall go before you;
the glory of the LORD shall be your rear guard.
(Isaiah 58:8 ESV)


Jenny

Tuesday, November 1, 2011

Shannon has an infection

This is a collection of updates from Courtney from the last 12 hours.. please pray for miracles!

Update #1--

Shannon is on an oxygen funnel. She continues to run a fever between 100.5-102. They have taken blood samples for culture. They started a broad spectrum antibiotic at 9:30pm tonight through her line. Her heart rat continues to run high between 200-212 due to the fever. IV fluids may start at some pointe tonight.
The peace of the Lord surpasses all understanding. Thank you for praying.


Update #2--

IV fluids. Temp 102.2. Added a 3rd antibiotic by line. Pulse Ox and rate go up and down. Blood pressure still good.

Update #3--

Fever is down! Pulse good and oxygen goes up and down. On IV fluids which brought heart rate and temp down. She is having tummy problems. Gave Adivan. Really think the pulse machine is off. But keeping oxygen on her. They r keeping her on Tylenol. She is on another antibiotic through her line. So that's 3 antibiotics. They are hopeful that will catch whatever this is. They have a sepsis protocol that we went over so that if she develops a blood infection they move fast and will get a PICU attending doctor and nurse here quickly. Sepsis is a blood infection.

Last update 2 hours ago--

Her blood tests and surgical entry site test came back. Both are positive for a staff infection. They are hitting it hard with antibiotics. We can't move forward with chemo until staff decreases. Can't push Medicaid. So we were told hopefully between a week to 3 weeks they can start treatment. Please this infection leaves now and God's will for Shannon's healing supernaturally be evident.

Im praying this for Shannon...

Isaiah 58:8-

Then shall your light break forth like the dawn,
and your healing shall spring up speedily;
your righteousness shall go before you;
the glory of the Lord shall be your rear guard.



Jenny

Monday, October 31, 2011

Acid reflux,yeast rash and thrush :(

Please read update below from Courtney and pray for dear Shannon!


Update: Shannon is battling severe acid reflux, gas due to gut inflammation and a yeast rash. Her fever is down. She has lost some weight. They are adding a medication back called regalin. Fewer doses in hopes she won't have diarrhea again.
The GOOD news: they have cord blood ready for transfer.
The FRUSTRATING news: chemo can't start until Medicaid approves a transplant. The process can take weeks.
Please pray with us for God to move these bureaucratic mountains.


Psalm 62:5


For God alone, O my soul, wait in silence,

for my hope is from him.


Jenny

Friday, October 28, 2011

UPDATE!!!!!!!

from Courtney : )


Update: HemOnc has 5 Cord Blood typings on hold for Shannon. They will have a transplant plan next week. That's all they will tell us. They aren't saying that will minimize the amount of time they initially told us. I'm hoping next week will go like this:
"You know when it's your birthday and no one says happy birthday to you all day or gives you are card or a present, but then that night you walk into a surprise party?" ...yep. This is what we are hoping for. once they have a plan it goes like this: chemotherapy, bone marrow transplant, then an average of 21 days to graft into her body. They already did all her preliminary blood work, nasal and rectal material check and all other necessary pre transplant labs to make sure Shannon is in "good health".
Our hope is that they did all the preliminary labs on Shannon because they intend to move quickly.

From Proverbs: The heart of a man plans his way, but the Lord establishes his steps.

Also, Teagan was able to see her sister today, so beautiful.

Thursday, October 27, 2011

i love marathoners.

Courtney writes of needs and heartaches.(updated caring bridges blog link below) im provoked my her raw honesty and posture
to put her faith in our Great God... wont you continue to join me in uplifting these
precious saints??

We continue to be so grateful for the meals and financial support. We are in need of a Hepa Filtration system for our home and to pull
out the small carpeted area on our first floor and put in hard inexpensive flooring in that space. This will
help us sanitize with bleach easier and keep our home germ free to keep us healthy as we visit the hospital
to care for shannon's needs and to eventually bring her home to a safe space.
God bless and please continue to pray with us as we plead to the Lord for deliverance.


in constant prayer,

jenny

I LOVE THIS FACE!!

Wednesday, October 26, 2011

Liam Not a Match.

Here is the latest from Courtney...

Update: Thank you to all who have prayed for our situation and for Liam to be a match for his sister. It pains us to announce that Liam is NOT a match. But God's ways are higher than any other and we believe that fully and completely.

"I will lift my hands to believe again. You are my refuge. You are my strength. As I pour out my heart these things I remember...You are faithful Lord forever."


your prayers are always appreciated.


Jenny

Tuesday, October 25, 2011

Pray For Shannon's Tummy....

Latest update from Courtney : )

Update: Shannon had a rough night. The medications cyclosporine and acyclaver are given every eight hours and take a total of 4 hours to complete with a cycle through her chest line. This seemed to bother her last night. Lots of tummy problems. Vomiting and diarrhea and gas pain. The culprit is unknown. Lots of meds and I asked to pull back on a couple. So zantac and regalin are now being given in smaller doses to give her system a break. Doing lots of laundry today to clean her clothes from projectile vomiting. Please pray for her stomach to settle. We want her to continue to gain wait and I believe this is God's plan as well.
Dr Boyer from HemOnc said our job is to keep her eating and gaining. No word yet on if Liam is a match. Her skin is still improving although very dry from the hospital hepa filtration. Exhausted, but still joyful and hopeful.


ephesians 6:18--

praying at all times in the Spirit, with all prayer and supplication. To that end keep alert with all perseverance, making supplication for all the saints...



Jenny

Monday, October 24, 2011

Update on Shannon, please pray : )

Hey all,

I read this from Courtney not too long ago.

Update: Shannon needs IVIG which is intravenous IGG red blood cells. Risk: fever and shock. Tylenol given preemptively to prevent fever. Atarax given to help in shock prevention. Prayer needed here. The hope is the IVIG will boost antibody production. She is still looking good. Feels so good to hold a chubby baby girl in my arms. Can't for the day when I can touch her skin and give her kisses not through a mask.
Here we go...



Romans 8:28

And we know that for those who love God all things work together hfor good,8 for ithose who are called according to his purpose.


Jenny


Tuesday, October 18, 2011

Blog for Shannon : )

Hi friends and family,

Courtney has started a blog with their story and regular updates, so you can
refer to that now : )

http://www.caringbridge.org/visit/shannonhopemurphy

im so grateful for your comments and prayers for our family. God is so good, always.


Love,
Jenny

Monday, October 17, 2011

THIS FRIDAY FOLKS!

more updates from Courtney.. they find out this friday if Liam is a bone marrow match for Shannon!

Update: HOPE - this morning's meeting with our bone marrow team brought hope. If Liam is a match, and we should know by FRIDAY, then a quick surgery for the two line ports in her chest an immune suppressing drugs start immediately. The chance for Liam to be a match is 1 and 4, but our God is greater, and His will be done!! We are on our knees that He make Liam a match or miraculously heal Shannon. They want her on immune suppressing drugs as soon as possible to heal her skin before chemo, so an IV in head is the plan. This way meds, which her stomach has not and cannot handle, will go in intravenously and not cause her to vomit. Her formula is being increased in calories by her nutrition team to hopefully increase her weight. Please pray her stomach tolerates this and her weight increases.
WE CRY OUT TO THE LORD WHO IS MIGHTY TO SAVE AND PUT OUR HOPE ON HIM.
Thank you for praying and to all those giving to our family through meals and finances, we pray your resources be increased and replenished.
Love,
Courtney and Ryan.

Sunday, October 16, 2011

{more info on the feeding tube}

from courtney less than an hour ago below..

Please lift Shannon to the Father. She has lost weight. She is 6.9 oz. A feeding tube is being discussed. Eventhough she eats so well she is not gaining and she continues to vomit after each dose of anti viral.
Our God is greater. We remain hopeful.



For God's Glory,

Jenny

Feeding tube...

thanks so much for praying and desiring to know regular updates for my brother and his family.. it is really touching and humbling. I read this today from Courtney.

Update: Shannon has not gained weight. Doctors feel a feeding tube may be in the near future. She is still unable to keep down the anti viral and there are no options of waiting to give it until the line is put. A"line" is a open port surgically implanted in her chest to give doctors and IV team direct access to a vein to give and take blood as well as give IV fluids and meds. Because of risk of infection the line cannot be put in until we have a donor match. Thus we are left with a feeding tube with hopes that giving the medicine directly to the stomach bit by bit will help her keep it down.
Blood draw tomorrow or Tuesday, but for now we rest with another day without the trauma of a blood draw and hoping for weight gain and rest.


Please continue to pray for faith that God is in control and that Courtney would remember that we were never promised a life without suffering but we can take heart that Jesus has overcome the world and He is our only hope : )

John 16:33

I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.”

Romans 8:31-39

What then shall we say to these things? If God is for us, who can be against us? He who did not spare his own Son but gave him up for us all, how will he not also with him graciously give us all things? Who shall bring any charge against God's elect? It is God who justifies.Who is to condemn? Christ Jesus is the one who died—more than that, who was raised—who is at the right hand of God, vwho indeed is interceding for us. Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution, or famine, or nakedness, or danger, or sword? As it is written,
“For your sake xwe are being killed all the day long;
we are regarded as sheep to be slaughtered.”
No, in all these things we are more than conquerors through him who loved us.

For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, 39 nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord.

Romans 12:12

Rejoice in hope, be patient in tribulation, be constant in prayer.


love,
jenny

Saturday, October 15, 2011

Pray for Liam's sickness...

Update from Courtney// She spent the night at home and now it appears that Liam
has croup and so she cannot be in the hospital


Please continue to pray our family. Our son Liam, who never gets sick, came down with what sounds like croup. Waiting to hear from our team of doctors if I'll be able to be with Shannon or have to wait 3-5 days. Heartbreaking.


Jenny

Friday, October 14, 2011

More Updates : )

Hi there : )


Here is another update from Courtney

please PLEASE pray for Liam to be a match. If he is not the international donor pool can take 2-4 months! I'm hoping for a miracle still. I know the Lord can perform miracles and heal her body with a word. The HSL typing for liam and shannon's blood work can take another 2 weeks or by a miracle come back sooner and then things would move fast. In the mean time they want her to grow grow grow. I'm praying for Shannon to reach 8 lbs on the next week. All things are possible through Christ. Pray with me.

I saw this photo below of the two of them and this verse came to mind, Romans 12:15,16

Rejoice with those who rejoice, weep with those who weep. Live in harmony with one another.

Please pray for continued strength and trust in their Creator, Savior, and the One who knows all things and WILL NOT with hold ANY good from them.

thanks,
Jenny

Thursday, October 13, 2011

Shannon's skin & throat...

hi friends,

below is an update from Courtney. Would you please pray for healing of her rash and throat?

Update: today is a 4ml blood draw. IV team should be here about 2 pm. Please pray for the Holy Spirit to pour down His peace over Shannon. She automatically cries when she is laid on the bed bc she associates it with pain. She sleeps in bed with me, in her swing or in our arms now. The vistiril is continuing to allow her to sleep. It still causes dryness of throat but PRAISE GOD her skin is less dry today!! The rash looks bad but I believe she is more comfortable. Still gas and tummy trouble but the living waters of Lord can rush through and bring calm to her tummy and bowels! Amen!
Thank you for interceding for our daughter. Please pray for Liam for peace as he adjusts. For peace for my husband and I.


THANK YOUUU!!!!!

jenny

Tuesday, October 11, 2011

Follow Up(date) from Courtney

Today was a family affair. Liam and I both had blood drawn. Liam did amazing!! He loved playing with all the awesome toys in our unit. It helped me emotionally to spend more time with him and have our family here.
Shannon's rash is worse today. Tylenol, vistiril, and sweeties (sugar water) have helped to keep her comfortable. Today was a huge blood draw so she needs to eat well and rest so her body can recover. Tomorrow more labs and then...WAITING...two weeks to be exact. Waiting to hear if Liam is a match. If he is things move fast. If not then they start looking in an international pool of donors. Pray, pray that Liam is a match. Pray for healing and that match won't be needed. Pray that a miracle will blow the minds of these doctors that don't believe anything short of their plan is possible. God blow their minds and receive You glory!

Strength will rise as we wait upon the Lord. So does our little baby Hope. Shannon's Hope :)

{ FYI, Shannon was diagnosed with SCID--Severe Complex Immune Deficiency }


Jenny

UPDATE : )

Today my darling nephew Liam will be tested to see if his bone marrow is a match for Shannon.
Please pray with me and Ryan and Courtney and so many others that it is?

Ryan texted me yesterday and said that Romans 8:24-25 was their whole life. What a clear, amazing truth to cling to! [and it happens to be my favorite chapter in the entire Bible]

For in this hope we were saved. Now hope that is seen is not hope. For who hopes for what he sees? But if we hope for what we do not see, we await for it with patience.


THANK YOUU!!!!!!

Monday, October 10, 2011

Please pray for Shannon Hope Murphy {my beautiful niece}

Hello,

I just wanted to send or start possibly a 'prayer chain' for my niece Shannon who is just a little over a month old.
She was admitted to the Children's Primary Hospital at the University of Utah a few days ago due to a rash/eczema
that would not go away and possible major food allergies.Needless to say, it has been very challenging for my brother Ryan and his wife Courtney
with many literal sleepless nights and frustrations in not being able to care for their precious newborn child.

I received a call from my brother today stating that the doctors found that Shannon was literally born without an immune system.
I do not know the name of this condition, but it is very rare and is basically a genetic combination of mom and dad. Thankfully,
she did not get sick! Courtney was able to breast feed and that helped in saving her life.
Praise God and that her condition is treatable within 3-6 months. She will need to be treated basically as
an HIV positive patient. She will undergo Chemo Therapy and a bone marrow transplant. Thankfully again, my nephew Liam appears
to be a great candidate for that. Also, this hospital is one of the top in the nation!
Could you please be praying for them? For God to heal Shannon. For financial provision. ( i do not think they have medical insurance : ( !!!! )
For a continued unity in their marriage. And for their church family to continue to support them and surround them with practical help
as there is a long road ahead. And ultimately continued trust and faith in their Saviour Jesus Christ!!!!

Thanks so much on behalf of the Murphy Family,

Jenny

Saturday, June 18, 2011

ill just write for now...

SO.  we live in 'affordable housing' if you will and we love it! There are a few things that one could say is an absolute must that we do not have. I say they are comforts, not necessities. Lately, I believe, God is relentless at killing my idol of comfort. Boyyyy do I loooove my comforts. Comfort foods, comfy clothes, no teething baby at 6 months old, more than one closet for an entire apartment (including clothes) yep we have no bedroom closet.... and the list could go on for a mile.
This morning I realized that I actually have a manual of this idol. It came to me as I threw another temper tantrum. This was a good one.. reality TV worthy. I would have been bleeped out for a good 30 seconds as I chucked a paper towel across the kitchen. *which landed in the sink, btw.. score!* Seriously though if I did have my own reality show, it wouldn't last more than an hour before breaking the camera persons arm shouting' turn that bleeping thing OFF '
anyway, coming back from the rabbit trail, i pray for patience ALL THE TIME. With my husband, with dear Oliver, with the free internet here that kicks me off every 2 minutes, and i think to myself.. once life slows down and our finances start looking up...then my attitude will change.... baaahaaahaaaa.. welcome to 90 % of AMERICA Jenny!!!!!
well, I feel better now, i think. Because in the midst of this chaos I have a Constant. The Holy Spirit does not cease to bring gentle reminders of his love and grace and sufficiency. That yes, I do not have it all together, or at times anything together ( i feel ) .. but God, the Creator, most Powerful... calls me by name and I am his beloved???? WHAAAAAA???????

amen, thank you Jesus.

oh and for Father's Day Ryan is getting a haircut at Del's Barber Shop .. that's how we roll.
He was stoked about it!
love my simple husband, what a treasure.


love,
j

Sunday, June 5, 2011

online journaling to the masses

Ok, so i guess ill give the usual disclaimer for not blogging now....

{gee wiz my life is so crazy// do you know what ive been thru//ill make it up to 'you' i promise..blah blah}

phew, glad that is over now onto my title.
i have a few questions...
dont you blogger maniacs ever feel weird about journaling to the public? or do you love it? why and why?

So, i was in bed after being a royal bitch to my husband tonite and i could not fall asleep.. thinking about my actions and how socially awkward i am now that im a newlywed.

which brings me to my other question: did or do you other marrieds ::newlywed or not::  ever go thru a time where you didnt know where you really fit in socially?
I mean i could have a million and one play dates with my females friends past and present, but when it comes to the hubby and me together, it appears as if we are invited to the 'everyone is invited' but not the other nites, catch my drift?
maybe cuz it does take effort for my hubby to be social and sometimes it is hard for him in social settings...
maybe cuz ive been a bitch , a critical one at that, one too many times???
maybe cuz our new life as a family really has been crazy and we simply have stopped pursuing others and are way out of touch with our amazing community?


anyway, i really never thought i would be the one going to a blog to 'journal' , if you will... but i need to sleep... my dear son Oliver will be up in roughly 6 hours and i am an 8 hour kinda gal, and it would be nice to share what is going on with my new lil family.. perhaps make some new//see some oldie friends along the way and to say at the end of the day and the final day.....


Jesus has overcome....


nite


j




ps. yes, I am still a God-fearing, Jesus worshipping Christian even thought i did say the bee word, still love me? thought so : )